U-M to develop guide for parents of children with disorders of sex development

University of Michigan researchers awarded funding to develop decision-making aid for parents that outlines all viable treatment options

ANN ARBOR, Mich., Jan. 16, 2013 /PRNewswire-USNewswire/ -- When a child is born with a disorder of sex development, decisions regarding gender assignment and genital surgery are often made quickly and under pressure.

Quite often those decisions are surgical and often irreversible. Former patients and health care advocates have long complained that parents are provided inadequate information to make decisions for their child with a disorder of sex development.

But with a new award from the Patient-Centered Outcomes Research Institute (PCORI), researchers at the University of Michigan hope to provide parents with the tools needed to make decisions about disorders of sex development (DSD).